SIO2018 has wonderful opportunities for the integrative oncology patient advocate community.
For the first time, the SIO Annual Conference will host a Patient Advocate Opening Session prior to the start of the conference. This session will take place on Friday, October 26, 2018, from 4:00-5:30 pm MT and feature a presentation from Patient Advocate and creator of the blog Chemobrain: In the Fog, AnneMarie Ciccarella, an in-depth look at the SIO2018 program and which sessions will be best for patient advocates to attend presented by SIO Patient Advocate Task Force Chair, Betsy Glosik, as well as an opportunity to network with other patient advocates at the event. Be sure to RSVP to this session when you register!
The Impact of Educated Patient Advocates in Research Partnerships
Friday, October 26, 2018 - 4:00 - 5:30 pm MST
Patients have the ability to play an important role in research. We will explore different and diverse tools necessary to ensure patient advocates are best equipped to have meaningful impact. From identifying opportunities where advocates may connect with researchers to finding appropriate training programs to learn best practices, different avenues will be explored. How to be most effective within research partnerships including the development of questions that matter to patients, setting up eligibility criteria, and helping with both trial accrual and dissemination of results will be discussed. In addition, we will investigate ways to best serve on peer review panels and advisory boards to bring the patient perspective into all aspects of clinical care.
About AnneMarie Ciccarella
AnneMarie Ciccarella, diagnosed with invasive breast cancer in 2006, is currently twelve years post-treatment. Presently with no evidence of disease, she launched a blog with the help of a writing program available to all patients and their loved ones at the cancer center where she was treated. Chemobrain: In The Fog, which she began writing to share her personal experiences of the daily challenges of living with chemobrain, changed the course of her life. She is currently a “care-helper” to her mom who is living with metastatic disease. Now involved in all sorts of advocacy efforts, AnneMarie has struggled with cognitive issues and hopes by continuing to share her story, she might help others. Actively involved with many cancer researchers, she strives to bring all patient concerns to the medical community. She is a graduate of Project LEAD, has mentored groups in AACR’s Scientist <-> Survivor Program, sits on peer review panels for the Department of Defense and the National Cancer Institute and is a member of the Digital Engagement Committee for SWOG. She also serves on the External Advisory Board at Lurie Cancer Center and is a patient partner advocate on a number of funded grants. Using integrative treatments alongside traditional medicine, her goal is to ensure that every person diagnosed with cancer, and their caregivers might achieve the best possible outcome from the moment of diagnosis and for the rest of their lives.
Interested in funding to help you attend SIO2018? There is potential SIO may be able to offer funding for Patient Advocates to attend SIO2018. For more information on eligibility and how to apply, click here.